You can see the layout I created to go along with the story in my original post from August 7, 2011. At that time, I did not have many photos of Sister. However, now that Mama is scrapbooking and scanning many of her older photos, I have quite a few in my digital collection. Today I'm sharing my original journaling along with photos of Sister throughout her lifetime.
Evelyn Mae was
born in 1942 in Mississippi. She was the sixth child of Tinie and Clora;
however she was the first girl (who lived), and so everyone called her
Sister. She was my aunt, my Mama’s older sister. In 1942, most women
would have put Sister away in a nursing home or state school, but not my
Grandma – she loved and cared for Sister until 1971 when the Lord took
Grandma home.
Sister was born with
mental retardation and physical disfigurements which included lobster
claw hand deformities and a cleft lip & palate (my parents were able
to have the cleft lip & palate fixed sometime in the late 70s).
While Sister’s body grew to adult size over the years, her mental state
remained that of an 18-month-old baby throughout her life. She wore diapers from the day she was born until the day she died and never developed the capacity to walk. She
did, however, learn to crawl and pull herself up in a chair, she
learned to show emotions by laughing, smiling, crying, and screaming,
and she learned to say “Mama.”
I remember that sometime after Grandma died, Grandpa came to live with us – Mama, Daddy, me & my two sisters. Mama
had us three girls, ages 5, 3, and 1, plus Grandpa (who would often
pass out unexpectantly) to care for, so Sister was placed in a nursing
home nearby. Mama went to visit
her often, making sure she was cared for, but after Grandpa died in
1973, Sister came to live with us. (Over the years, we did have help
from my aunt & uncle who took turns keeping Sister, too.)
The day Mama brought
her home, she had a sore on her foot that was rotting her skin and
muscle away. The nursing home had tied Sister to her rocking chair,
which was tied to the doorknob in her room – these measures designed to
keep Sister from crawling around and “bothering” other people in the
home. Sister didn’t know she was bothering other people any more than a baby would; she loved people.
My freshman year of
high school, Sister went to the state home. I wish I could tell you that
it was difficult for me without her there, but honestly as a teenager I
was relieved that we would no longer have to endure the stares of
strangers when we went shopping or to Astroworld or when my parents
brought her to see me act in my high school’s theatre production of Guys & Dolls
and she yelled out when she saw me. I no longer had to worry that I
would need to change a diaper if Mama was sick (even though this was a
very rare occurrence anyway). I wouldn’t have to give her a wide birth
when she was angry and slapping everything within reach.
I didn’t realize at
the time that I would also no longer hear her laughter, loud &
uninhibited as only a young child can laugh. I didn’t realize I would no
longer be able to sit in her lap and let her pat my head as if I was
her baby doll. I didn’t realize the guilt Mama would feel for making the
decision to place her in the state school. I didn’t realize how much
resilience I had learned from all those years of people staring at us. I
didn’t realize how I would regret not having appreciated the sacrifice
Mama made, first taking care of Sister with three young daughters, then
placing Sister in the state school so she could be there for her teenage
daughters.
I hold a teaching
certificate, a bachelor’s degree, and a master’s degree. I’ve traveled
around the world. Yet I don’t believe I’ve ever done anything that
rivals what Grandma and Mama did, taking care of Sister for 44 years.
Beautiful story :)
ReplyDeletethis brought tears to my eyes, what a wonderful story of family love
ReplyDeleteIt's a moving story and worth sharing again.
ReplyDeleteYour grandmother and mother did a wonderful thing caring for her as long as they could!
ReplyDeleteI remember your story and the impression it made on me then and I have truly enjoyed revisiting it with your very moving pictures too. One of the finest of all Storytelling Sunday stories!
ReplyDeleteI missed this first time around....so glad you chose it today xx
ReplyDeleteWhat a beautiful story. And the photos are such a treasure.
ReplyDeleteExtremely moving and how wonderful to have these photos of Sister now. I also missed this the first time around, so thank you for sharing it again x
ReplyDeleteWhat a beautiful story! Back in the "old days" many families put loved ones in a state home. I admire your grandmother and mom for making such a huge sacrifice---although they would have looked upon it as just doing what family does!
ReplyDelete